Ableism: Discrimination Against Disabled People by The Wheelchair Teen

The act of writing forces us to contemplate things more deeply and to question what we believe. Bloggers, novelists, all writers lay ourselves bare when we publish. When we communicate our passions, readers are challenged to think — and they challenge us!

Thank goodness for the world of blogging (and podcasting), a Utopian alternate universe where anyone with access to a smartphone or computer, along with the internet, can send their unfiltered voices all over the world.

Without blog-topia, I would never have stumbled across a blog called, “The Wheelchair Teen – My life as a black, disabled teenager.” There she lets us into her often fun, sometimes heartbreaking life. With good humor and patience, she teaches everyone to live with joy and compassion…

The Wheelchair Teen in her wheelchair.
The Wheelchair Teen in her wheelchair.

Ableism: Discrimination Against Disabled People by The Wheelchair Teen

Hello, everyone! I’m The Wheelchair Teen and I write about my life as a black, disabled teenager. I’ve been disabled ever since I was born and a permanent wheelchair-user since the age of thirteen. I’m British but currently residing in the Netherlands with my parents and sister. Thank you so much to da-AL for allowing me the chance to write a guest post for her incredible blog to help me spread my message of equality for all disabled people. If you want to see more of me you can find me at my blog called, The Wheelchair Teen – My life as a black, disabled teenager.

Ableism is the term for discrimination against disabled people, but unlike other forms of discrimination, it isn’t viewed as negatively. Most people don’t get educated about disabilities and remain ignorant. It’s therefore harder to get angry at people when they act ableist towards me — they honestly don’t know any better. So, when I encounter ableism, I sort of just have to deal with it and let it slide  and it’s exhausting, alienating, and something I shouldn’t have to face. Ableism is everywhere, and until people start to educate themselves more about disabilities, it’s something I’ll have to continue to deal with in almost every aspect of my life. Here are the five main ways that I feel othered in society as well as things that you can do to educate yourself and help to end ableism:

  1. People treat me differently

Sometimes adults talk slowly to me or avoid addressing me by talking to whoever’s next to me when discussing me. People pick up my limbs and move them for me without my permission or make offensive assumptions. At school, I was often alone because students were unsure how to treat someone like me and would therefore ignore me altogether. People stare, point, or talk loudly and rudely about my body in front of me and assume that I can’t understand. Little children occasionally even run screaming from me when I’m in my electric wheelchair. All of this makes me feel extremely isolated, alienated, alone, and othered  and that’s not even mentioning the different ways buildings and companies discriminate against me when I leave the house or go on trips. I’ve been turned away from places that claim to be wheelchair-accessible and discriminated against by employees.

Photo of The Wheelchair Teen's electric wheelchair.
My electric wheelchair.

I talk a lot on my blog about inspiration porn which is the objectification of disabled people as two-dimensional objects of inspiration. People treat us like we only exist to inspire people. I’ve had absolute strangers pass me on the street and tell me that I’m their hero. In fact, most people either assume that my life is awful and therefore treat me with pity or treat me like I’m a superwoman simply for waking up every morning like everyone else. In reality, my life is pretty sweet. The most difficult part about my life is actually how I’m treated in society  not my actual disability. I know this isn’t the case for everyone but you shouldn’t instantly assume it’s not. I’ve been disabled for as long as I can remember  I can handle it, it’s ableism that’s the major issue for me.

  1. They don’t teach about us in school

More education about disabilities is key in our fight to help combat ignorance. I’m certain that if my classmates had known how to treat someone like me, they wouldn’t have been so hesitant to approach me. Also, if children knew more about disabilities there’d be less pointing and staring as if they’ve never seen someone like me before, not to mention the children that ran from me terrified. Libraries should include picture books about disabilities and we should be mentioned in every diversity class along with other minorities.

Photo of The Wheelchair Teen giving a presentation about disabilities to children at a primary school.
Me giving a presentation about disabilities to children at a primary school.

Ignorance can be deadly: it is estimated that between 33-50% of police violence happens against people with a disability (although it’s hard to tell because it’s rarely recorded for statistics). I cried while reading through all of the cases of police shooting disabled people that they had been called to help in the first place. It’s a serious problem that not enough people are talking about. The police force needs to be better educated when it comes to handling disabled people – whether it’s shooting a deaf person because they couldn’t hear the police telling them to stop, or firing at someone with a condition that makes it incapable for them to stand still and raise their hands. They must be held accountable and taught that their behaviour is unacceptable. And these cases need to be reported and receive the same attention as any other police brutality case.

  1. There’s no one like me on screen

Disabled people are the biggest minority in the world with around one billion people around the planet being disabled. Despite this, we have one of the lowest amounts of representation in films and TV. Only 2.3% of speaking characters in films are disabled. Growing up, I used to think I was strange because I hardly ever saw anyone like me on TV – and I wasn’t the only one. We’re talking about representation in media as low as 1% for a minority that is around 20% of the world.

Photo of The Wheelchair Teen with her hand over her mouth and the words: “Stop stifling disabled voices in media” on them.
Me with my hand over my mouth and the words: “Stop stifling disabled voices in media” on them.

95% of disabled roles are played by non-disabled actors, which is unacceptable! Able-bodied actors are critically acclaimed and win numerous awards for pretending to play a disabled person – but a lot of their performances (from the perspective of a disabled person) border on imitation and mockery. By not getting actual disabled actors to play these roles, you alienate disabled people by making them seem like mystical beings that cannot appear on screen, that can only be mimicked and impersonated. I’m not a ‘challenging acting feat’ – I’m a real person.

Meanwhile, real disabled actors struggle to get hired because people would rather see famous actors curl their fingers, twist their legs, tilt their heads, and pretend to be us for another guaranteed Oscar-nominee feel-good film. Filmmakers don’t want the real thing – they just want their own version of it, which audiences will then mistakenly believe is reality. I dream of a future where able-bodied actors playing disabled roles is seen just as negatively as actors playing other minorities when they don’t share their experiences.

  1. No one celebrates disability day

While throngs of people and numerous corporations celebrate International Woman’s Day, Pride Day, and Black History Month, the International Day of Disabled Persons goes under a lot of people’s radar. There is honestly so much beauty in being disabled, there’s so much to celebrate, and so many rights that still need fighting for. Help to raise awareness about disabilities by educating yourself and spreading the love this third of December. 

The Disabled Teen having fun in front of a carnival wall.
The Disabled Teen having fun in front of a carnival wall.

Like other minorities, multiple people throughout history have fought for the rights of disabled people. One day I was sitting in a history class at school when I realised that I knew about the suffragettes who had fought for my right to vote as a woman and the incredible civil rights activists who fought for my equality as a black person, but I knew nothing about the people who had fought for my rights as a disabled person. I did some research about disability history and I was so proud to see all of the people who had stood up for people like me. Their stories deserve to be taught in schools and history classes too. They deserve to be remembered.

  1. Disabled representation is awful

We’ve all seen disabilities used as plot devices: like the disabled or scarred villain who has a disability to show their dark, twisted mind or past on their bodies in a physical way; the action character with a child who has asthma so that tension can be built in the film when the main character has to rush to get the inhaler at a critical moment; the protagonist who ends up in a wheelchair in their weakest moment but manages to walk again once they continue to believe in themselves. And we’re all sick of it.

A disabled character created by The Wheelchair Teen for a comic.
A disabled character I created for a comic.

A few weeks ago, I burst out crying after watching a show with a character in a wheelchair that wanted to end their own life. It had been the THIRD show/film I’d seen in a row with a character in a wheelchair that wanted to do this. How can this be a theme in so many films with disabled representation? What kind of message does this send to people like me? If this is the only kind of thing a disabled person sees – what do you think they would start to believe? It made me angry. It made me feel like society thought that I’d be better off dead. Disabled people go through enough without having to put up with these types of horrible representations. (In most of them, disability was not the main focus of the show – it was just a side storyline. One was a comedy series, one was an anime, the other a romance film). I can’t believe that we’re still at this point when it comes to representation.

I’d love to see more casual disabled representation where character’s disabilities aren’t the focus of their entire existence – where they’re treated like normal characters that don’t even need to be the main focus of the story, representation where they aren’t healed at the end so people don’t think you can’t have a ‘happily ever after’ with a disability, intersectional representation where disabled characters can also be black or be members of other minorities, representation where their disability isn’t due to an accident – they’re merely born that way, etc. I’m currently working on creating a comic book about a team of disabled superheroes. It’s set in a sci-fi, Afrofuturistic world so there’s plenty of intersectional representation in it.  

Most importantly, I hope that disabled people are consulted while creating such a work. People praise films like Me Before You or Music until they hear from the actual disabled people that the film is representing and realise that they’re outraged at the bad representation. You can’t ignore the community when you make or watch films like this. Nothing for us without us. 

What can you do to help end ableism?

  1. Educate yourself and others

I recently started working on a story with disabled characters and I had to do a lot of research for it. I learnt so many new things like: the correct way to refer to certain disabilities, terms that are actually found offensive within the community, ways to make yourself easier to lip-read when talking to a deaf person, wheelchair etiquette, things that are okay to ask and things that may be rude, basic phrases in sign language, not to interact with guide dogs when a blind person is using them, etc. Education is key, I teach people about disability and even I still have a lot to learn.   

  1. Watch and read more disabled representation

There needs to be more outrage about films and books that go out of their way to discriminate against the disabled community and more attention for the ones that don’t. Read more books written by disabled authors and watch more films and tv-shows with us in them. Listen to our stories, we’ll show you that we’re much more than 2d objects of inspiration or pity.

  1. Support disabled content creators 

Apps like Tik Tok were found deliberately preventing videos with disabled people in them from going viral. More attention for disabled content creators means more normalisation of disabilities for their followers. I’m not the only one out there sharing about life with a disability. Also, add subtitles to your videos and captions to your pictures to make your posts more accessible for disabled followers.

Research citation: https://www.forbes.com/sites/joewalsh/2021/05/18/new-york-ags-investigation-into-trumps-business-turns-criminal/?sh=7ed291937332 

What do you think about media depictions of disabled people?

COVID-19 Art: Connie D.K. Lane’s Light + Darkness

Artist Connie D.K. Lane honors lives lost to COVID-19 with her installation for Glendale Central Public Library.

Tragic times, including this COVID-19 era of death, illness, fear, misconception, and bigotry — can bring out the worst in us — and the best. The shadowed and the illuminated, the ugly and the beautiful, the narrow-minded and the caring…

The devastation of COVID-19 inspired artist Connie D.K. Lane to create an installation where viewers are coaxed to feel and think. Amid the sad emptiness of the quarantined Glendale Central Library, she invited volunteers to help her fill the space with color and movement to honor Los Angeles County residents who’ve passed away from the virus.

The project was funded by the City of Glendale Arts & Culture Commission’s Art Happens Anywhere COVID-19 relief initiative, an organization which also funds an impressive urban art program. They call it, “…both a beautiful and poignant reminder that while numbers of new cases are currently on the decline, daily case counts are still three times higher than they were in October 2020, and County reports have identified new strains of the virus in the community.” The project was unveiled by Supervisor Kathryn Barger and included the help of Glendale Mayor Vrej Agajanian, Arts & Culture Commission Chairperson Caroline Tufenkian, and Director of Library Arts and Culture, Dr. Gary Shaffer.

Connie’s “15,000 and More: A Plethora of Light and Darkness” employs over 15,000 Chinese joss paper ingots. Hanging from the ceiling, the ingots form a constellation evoking the overwhelming number of Angelenos who’ve passed away from COVID-19. Watch multi-media journalist Aziza Shuler report on it for Spectrum News1

Does Connie look familiar? I featured one of her art shows here and a sneak preview to another here that I took part in, and that show here with a video, and a video of another I also participated in here.

Has Covid-19 inspired you in a surprising way?

 

Making Music Blind During Covid by Noé Socha: with videos

Musician Noé Socha.

“Even if my marriage is falling apart and my children are unhappy, there is still a part of me that says, ‘God, this is fascinating!’” — Ernest Hemingway

Noé Socha is a musician who’s life is by no means falling apart due to his being blind. Goddesses, though, his life is fascinating!

Got writing blues? The Covid blues? The “when will the world learn that fear and hate aren’t the answers” blues? A couple of minutes with Noé’s guitar and harmonica will color them into rainbows.

CBS New York news interviewed him a couple of weeks ago.

I first learned of Noé thanks to Kenya Greaves, a friend I met online through her work as an online writing tutor. She’s a great help with editing my novels. Watch Noé’s video below (one of many at his YouTube Blind Selfie channel) for Kenya’s appearance as a backup dancer.

Noé grew up in Carpi, Italy (a lovely place that, like my Los Angeles, knows earthquakes). Now he’s based out of Brooklyn, New York, the part of the United States that Covid hit first. As a result, it got walloped extra hard.

He’s released albums and garnered top awards from the Berklee College of Music and Billboard Magazine. In addition, he’s toured, performed, and recorded with artists including Nona Hendryx (Labelle), Vernon Reid (Living Color), and Grammy winners, Javier Limón and Paula Cole. Breedlove, an Oregon guitar manufacturer, just added him to their stellar lineup of signature artists. The oldest harmonica manufacturer, Seydel, a German company founded in 1847, invited him to collaborate; here Noé demonstrates one of their harmonica holders on his Facebook page.

Even Mastercard recognizes he’s “Something Priceless.”

Read on for his thoughts in his words about living creatively through Covid…

My Experience as a Blind Musician During Covid by Noé Socha

The beginning of Covid was very strange for me. I’m from Italy, so I saw all my friends going in full lockdown a couple of weeks before the states, but I still had performances every day until March 15. It was hard to stay focused, knowing how everything would have changed in a very short matter of time. I was questioning myself; I felt selfish taking all these chances, but I also felt like I couldn’t do any different.

I came back to NYC from PA on Monday, March 16, and I’ll never forget the feeling of seeing Times Square deserted at 9 PM. It didn’t seem real.

The next month or so was very challenging for me, I didn’t have any inspiration to play, people were dying and getting sick, it felt wrong to post music. All my musician friends were doing online streams, but nobody was making any money from them. Teaching guitar online was hard, I don’t feel I can help people very much without being able to touch their hands, and I can’t have close-up shots of myself. I also live alone, so I would go thirty plus days without seeing anyone. 

I decided to start posting again when I realized I was losing my chops on the instruments, I couldn’t let all the work I put into it go to waste, and I needed something to look forward to artistically. I take selfies with my phone. The shots may not be very good, but I thought it would be interesting and different to have a blind person videotaping himself. George Floyd’s homicide and all the people that spoke out and told their stories after that gave me even more motivation to use my artistry to stand in solidarity and support.

In the summer, the gigs came back, sort of. I was playing outside bars, on the sidewalks, for tips. It was very nice to see how eager people were for live music, but it was also stressful trying to respect social distancing. I found myself hesitating when I needed help getting places; I wasn’t sure how to get people’s attention without getting close to them, and I didn’t want to make anybody uncomfortable. I am fortunate to be able to use Access-A-Ride, so I didn’t have to take public transportation.

Now we’re back in lockdown, and it feels like we’re in March again. I keep posting my videos, hoping to increase my followers and inspire people. I’ve realized that it’s important to have something to keep us motivated, even if we don’t see many results. Persistence is key. If I get somewhere with the videos, I want to show that all the work and struggle we’re going through will be rewarded someday, in ways we didn’t necessarily predict.

Has Covid impacted your creativity?

105! Oh my! Happy birthday, Sam Sachs, update with new video by da-AL

Sam Sachs on his 105th birthday! Screenshot from CityTVLakewoodCA video.
Sam Sachs on his 105th birthday! Screenshot from CityTVLakewoodCA video.

Hurray! Sam Sachs’ 105 birthday, which I first posted about here, was a massive success in every way. His birthday last Sunday, was a bit different due to COVID19 (here and here and here and here and here and here are some posts that might cheer you through this crisis). As of that morning, according to the Long Beach Post News, the retired high school teacher and celebrated WWII vet received over 6,200 birthday cards from all over the United States and probably other countries too.

Seventy-six years ago, in nothing but a glider, a.k.a. a “flying coffin,” pulled by an airplane, he landed with other soldiers behind German lines to help liberate a Nazi internment camp! For his bravery, Sachs was recently inducted into the French Legion of Honor.

Lt. Col. Sam Sachs fought in WWII.
Lt. Col. Sam Sachs fought in WWII.

The mayor of where Sachs was born, Grand Forks, North Dakota, proclaimed Sunday in his honor. U.S. President Donald Trump sent a dozen Army National Guard members with a laudatory letter, a photo, and a framed flag.

News coverage came from all over the place, in addition to my own posts and shares. There were so many greetings from Southern California-area politicians, among them Lakewood’s Mayor Todd Rogers. Here’s a full account by Lakewood’s news…

Over the days preceding Sachs’ special day, fancy decorated vehicles, old and new, private and public, paraded past and over his house. That included low riders, collectors, a Los Angeles County fire truck, sheriff’s cars, and a sheriff’s helicopter.

Sachs promises he’ll do his best to be around for us to help him celebrate his 106!

On the day of his birthday, Sachs thanked one and all amid a front-yard filled with hundreds of donated American mini-flags.

“I had no idea what to expect … This is magical.”

Presents from strangers arrived too, such as how one man dropped off $50! Ivonne Meader, the owner of the senior care home, noted that the event offered folks a chance “to be part of something special.”

When’s the last time you mailed kind thoughts to someone? Do it right now to do a good deed, plus support the United States Postal Service. Out of stamps? Set out an envelope marked “U.S. Postmaster” for your carrier (neither postage on it nor a handling fee required) with your check inside with instructions regarding your order — or order online. President Trump wants to do away with the USPS, yet without it we’ll be at the mercy of private companies setting rates and deciding whether small towns and hard to reach places are profitable enough to service…

Vids n easy COVID feelgood: Help celebrate amazing 105-old! by da-AL

“The difficult, we can do immediately. The impossible will take us five minutes longer.” Sam Sachs

Searching for a fun, easy way to feel great amid our sheltering, social distancing, and making sure that we leave our homes wearing face masks? I sure could use one! Doing for others takes us out of ourselves, makes the whole day bright, light, and sweet-smelling. Doing someone a good turn is win-win — great for the giver and lovely for the receiver alike. Here’s what we can all do today for the price a piece of paper, an envelope, and a postage stamp! Please share this with anyone you think might benefit from it too…

No part for Sam Sachs on his 105th -- but we can help!
No party for Sam Sachs on his 105th — but we can help!

Sam Sach’s 105th birthday is April 26, right around the corner with time enough for each of us to get involved.

The caring folks at the senior living home where he resides appreciate him so much that they planned a terrific party for him. Unfortunately, the COVID19 crisis has smashed his bash.

Back when Sam Sach's three sons were very young. Back when Sam Sach’s three sons were very young.

No worries in the case of challenge-expert Sam. He’s giving us a chance to be involved!

Lt. Col. Sam Sachs fought in WWII. Lt. Col. Sam Sachs fought in WWII.
Crossing behind enemy lines, Sam Sachs was prepared to die to help others. Crossing behind enemy lines, Sam Sachs was prepared to die to help others.
Sam Sachs helped liberate Hitler's prisoners. Sam Sachs helped liberate Hitler’s prisoners.

A little about Sam: he was prepared to give his life as an Army Lieutenant Colonel when he helped liberate prisoners of Adolf Hitler’s concentration camps. As both a Jewish man himself and an Army paratrooper member of the 1944 Allied D-Day liberation of Europe from Nazi Germany, he led troops behind enemy lines.

Back home, Sam Sachs taught teenagers and worked to improve California schools. Back home, Sam Sachs taught teenagers and worked to improve California schools.

Later, back to his civilian world, his generous deeds continued when he became a high school teacher of business. He worked inside and outside of classrooms, including with the United Teachers of Los Angeles, to improve education in California.

This photo was from a while ago, but Sam Sachs is still going strong! This photo was from a while ago, but Sam Sachs is still going strong!

This video, produced by the Los Angeles County, Calfornia, city of Lakewood when he turned 102, explains a bit about his extraordinary life…

Where do you and I come in? Here he explains…

That’s right — all he’s asking for is a simple birthday card that each of us mail to him. Cards will be set aside for several days and then opened with gloves to be sure that no COVID germs decide to cling in transit, for Sam’s sake as well as those who care for him.

Here’s where to mail cards to him at the assisted living home he stays at:

Mom and Dad’s House
C/O Lt Col Sam Sachs
4340 Conquista Avenue
Lakewood, California 90713
USA

How many birthday cards will Sam Sachs get? A vintage car has already given him a parade! How many birthday cards will Sam Sachs get? A vintage car organization has already given him a parade!

Here’s the results of how his birthday went! And here and here and here and  and here and here and here are some posts I hope will help you through the crisis.

What are your easy feelgood ways to get through a crisis?

Honoring World HIV/AIDS Awareness Month by da-AL

Pessimistic about the world? Have you written off activism as a dead end? Think again. Thanks to the courageous efforts of one activist at a time, we’ve come a long way since the hellish first days of AIDS. Once upon a time, being HIV positive meant early death and having to endure enormous bigotry.

Image by Oberholster Venita from Pixabay.

Fortunately, these days we have ways to prevent it. Folks who are tested early and are found to be HIV positive can live long lives with treatment.

Moreover, the U.S. Department of Health and Human Services is working to end the U.S.’s epidemic within the next ten years!

In addition, it’s working to end discrimination in the U.S. against patients with HIV!

Since 1988, each December, people worldwide show their support to end HIV, both as a disease and as a stigma. We pay our respects to those whose lives have been cut short by it, and to those who live with it.

Here are some of my impressions of the early days of AIDS, which I wrote in reply to my good David Hunt’s post here. He also wrote about it here. Another site with historical information is Gay in the 80s.

Do you ever feel like activism is useless? How do you keep from getting down?

Guest Blog Post: Best novel writing secret ever! by Bryan J. Fagan

Have you written — or tried to — write a novel? Take if from my experience as a soon-to-be self-published author, epic internal persistence is needed to take on the adventure that has no guarantee of success.

A native of Washington, Bryan J. Fagan blogs from Oregon. He just released a romantic comedy, “Dempsey’s Grill,” and is hard at work on a second book. Here’s his time-tested advice for completing a novel…

“The Secret to Writing a Novel” by Bryan J. Fagan

I was trying to think of a subject to write about for Happiness Between Tails. I always have something brewing in this head of mine. Believe me, there’s a lot of stuff up there. But there was one thing that kept rising to the surface that just wouldn’t go away, and it had to do with quitting.

Or I should say – not (yes — n-o-t) quitting!

For those of us who set out to write a novel, we always have a handful of ideas. Sometimes we pick one and quickly discard it. Other times we pick two and combine them. Unfortunately for many of us, the novel fizzles.

It usually comes around the halfway mark of draft one. We’ve created far too many characters, or the plot is weak, or we’re bored. So we put the story away, we forgot about it, and we promised ourselves that someday we’ll try again. But for some of us, that day will never come.

Would you like to know the secret to writing a novel? Resist the urge to quit!

When I wrote “Dempsey’s Grill,” I can’t tell you the number of times I wanted to walk away. There were plot holes, plot changes, and subplots that were ridiculous. But I knew I had something. I also knew I owed it to the people I created to tell their story.

Writing a novel is hard, really hard. But walking away is easy and who wants easy when doing something hard is much more fun.

All of us who have published our work has had to fight the urge to quit. But we knew better. We knew that in time the story would open up, the characters would come alive, and that in time, these people that we created would be telling the story instead of us.

Writing “Dempsey’s Grill” was one of the hardest things I ever did. It is also one of the most rewarding. So fight off the urge to quit and write your book. You owe it to those amazing people you created.

What do you do when you feel like giving up on your dream?…

Video: Strength and Compassion in the Worst of Times by da-AL

In the worst situations, strength and compassion shine brightest. Terrible times strip away everything but what’s essential, leaving bare the best in us and those we encounter during our trials. 

The first time I learned the depth of this truth was when I co-produced a video for the Leukemia Society of America (nowadays Leukemia and Lymphoma Society). They’d hired my business partner, David Hunt (who has written for HBT here and here), and me (our non-profit company was called, Vista Educational Media) to encourage therapists, as well as people struggling with leukemia to get involved in the agency’s support groups. Executive Producer was Maureen Nunn. We videotaped at Wellness Community South Bay Cities, which is now Cancer Support Community Redondo Beach. The Los Angeles Times wrote of participant Roger Kahl’s valiant life here.

The way David and I worked was always to let subjects speak their truths, then we’d do our best to edit and narrate accurately. For each project, David and I would alternate who would be in charge and who would assist.

Thank goodness for this one David conducted the interviews, wrote, edited, and narrated. It took all I had not to sob while I stood to videotape behind the tripod. Reviewing it all these many years later, I still cry at the incredible bravery of the interviewees and David’s outstanding storytelling.

On David’s site, he details his experience with this project. Here’s his preliminary description for my site here…

“By the 1990s health educators understood that video-assisted storytelling was an effective way to engage patients and get them involved in their own health care. But many of the nation’s top health organizations, including the Leukemia Society, used actors as stand-ins for actual patients in their health education videos. In 1992 I was part of a documentary team that convinced the organization to trust people with leukemia to share their own stories.”

Linear Amplitude: I’m in an art installation! by da-AL

da-AL modeling for Connie DK Lane's Linear Amplitude art installation
Here I am, modeling for my friend’s upcoming show.

Yeah! My friend, artist Connie DK Lane, is having another show (here’s an installation she did to honor lives lost to COVID-19 here, this was an earlier show — and this is another I performed in). Please join us. Below are her official info and description…

Info for Connie DK Lane's Linear Amplitude art installation

“Connie DK Lane’s work is born of her emigration from Hong Kong and evolved from contemplations on belonging, memory, and being. By combining aspects of lived experience and creative imagination, Lane’s art beckons viewers to meditate on their own complexities. Artist reception March 23, 2 to 5 p.m. with a performance at 3 p.m. The show runs through April 29.”

What’s the last art show you attended?…

Guest Blog Post: “Whisper: I Slept With My Bully” by Kally

Photo of a woman on a bed, her back to us

This tragic story, retold by blogger Kally, is all the sadder because the young woman to whom it happened blames herself for what isn’t her fault. To heal, she bravely recounts it to us so that the same thing doesn’t happen to others…

MiddleMe

love your column Whisper and I hope by sharing my story, perhaps some young girl out there will learn from my mistakes and maybe save herself from evil.

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