Pessimistic about the world? Have you written off activism as a dead end? Think again. Thanks to the courageous efforts of one activist at a time, we’ve come a long way since the hellish first days of AIDS. Once upon a time, being HIV positive meant early death and having to endure enormous bigotry.
Mike (And the gang) blog from the Northeast U.S.. They say of their site: “We live with Dissociative Identity Disorder. We are a close-knit family system whose mission is to educate and entertain others about the reality of what it means to live with DiD. We invite you to our website and to learn more about us! You can interact us with there, as well, if you like. Most in our family love making new friends.”
According to them, “…every human on Earth has multiple personalities. We all talk to ourselves; Have internal dialogues.”
In trying to understand, I asked what they thought of this mainstream online definition of DiD. They answered, “The descriptions of DiD are always…”Sterile.” Describing DiD from a medical perspective is completely different from the subjective experiencing of it. While science claims that alters are defense mechanisms, living with alters and becoming them – they aren’t defense mechanisms. They are individuals with their own thoughts, feelings, agendas, and disposition(s). It’s much more complicated and delicate than what’s being described in medically sterile terms….1% of the population? We would say those numbers are wrong, a bit high. Many people who claim to have DiD are actually misdiagnosed by doctors who don’t understand the disorder. Also, many therapists will erroneously suggest DiD or alters to a patient.”
Mike (And the gang)’s daughter, Katy Mae, describes the experience of a dominant split, “which can be a terrifying and mystifying experience to have,” here…
“Streetlights” by Katy Mae
Streetlights pass but time stands still; Mouths move but with no sound,
There are no longer, my memories, to hold on to; Disappeared in the night.
Not able to shiver, not able to cry,
This night is different but there have been many like it.
A blank stare, a whisper in the night,
lights pass in the night; Mouths move but there aren’t words -Just noise.
Who are we now, with no destination; no place to call home,
red lights pass in a blur; my own comfort to a place unknown.
There are no longer dreams, no more nightmares in this place
memories slip away while faster cars pass.
Who are we now and why must we go,
another stop away from nowhere.
The radio plays, my favorite song whose title I can’t recall,
not that it matters; My former life is now gone.
Replaced with a ghost whose name no one knows,
There’s no time to breathe, no time to whisper for help.
No longer awake, no longer asleep; Who are we now?
life, oh life, it comes to a halt while I still breathe.
Where are we now; I’ve forgotten my name again,
remember it, whoever I become; Whom I fear the most.
No one to hug as we travel alone in our world; This cold, lonely place,
still someone speaks; Still, just noise and static.
I’d rather stare ahead and forget who I am becoming,
please don’t stop; The passing lights are an illusion of escape.
Who are we now and where are we going; your voice has changed,
the sun is rising and I can’t remember my name,
How did I end up in this cold dark car,
and why with you; Who are you?
Engage and share the joy: click buttons and comment. *** Note: WordPress insists ‘likers’ sign in. ‘Commenters,’ fortunately, need not. My email: ContactdaAL@gmail.com
My inner cynic can loom monstrous enough to be laughable. When it skulks, it can be harder to address. Caz, who lives in England, understands that emotions are part of being human. Without being syrupy, without promoting denial, she offers practical help. Her Invisibly Me site deals with living with invisible chronic pain, including living with an ileostomy (not to be confused with a colostomy). Here’s a sample of her best advice…
I wrote this with chronic illness in mind, but it also applies to other spheres of life, from living arrangements to your financial situation.
Focussing on what you can’t do. It can become a vicious cycle, leaving us exhausted and disheartened before we even begin. It can happen for various reasons. Looking at how things used to be in the past, such as before chronic illness took hold. It may be from social pressures concerning what we ‘should’ be doing at this point in our lives. It may be from comparing your life to how you thought it would look, or comparing your situation to that of your peers.
For whatever reason, it’s good to work on acknowledging and accepting the situation and what you can’t necessarily change right now. Then, redefine what’s important to you, not what you feel you ‘should’ value or want. Write your own rules. Find new paths to explore and get creative to find ways to get there. Maybe you can’t do certain things, but there will always be options and alternatives. There are always small changes you can make and actions to take to improve your situation or live your best life. You may just have to look a little harder to find them.
It’s also about readjusting expectations and making them more realistic and manageable. Take note of the things you can be grateful for that often get lost in the midst of pain and illness, or stress and worry. It’s about looking at the things you’re good at and the positives you can eek out of your situation and experiences. You’ve become stronger and more resilient. Perhaps you’ve met new people in person or online, such as through blogging or support groups. Maybe you’re more compassionate, empathic, have found a new skill or have become more appreciative of the small joys in life.
When we focus on the negatives, the limitations or the things we can’t change, we give up our power. By honing in on those things you can’t do or have, or the ways in which you feel constrained, it limits your perspective and experiences even more so.
By focusing on the can’t-dos, you’re reducing yourself & your life. You are more than just the things you can’t do.
Empower yourself by looking at what you can do, no matter how small. Look at the things you can change, the tasks you can accomplish, the things you can choose to do.
Instead of ‘I can’t do…’, change it to ‘but I can do…’.
You’re doing the best you can, with the cards you’ve been dealt and the situation you find yourself in. A little jiggle of perspective can make a big difference. Don’t close yourself off from possibilities. Instead, think outside the box and take back some control over your life. You may just find that you’re capable of more than you imagined.
I’m letting my heart spill out through my keyboard… metaphorically, of course, and I’m offering it all to you. Today, I’m going to talk about my mental health. This is something that I’ve worked to conceal for a long time, mostly because of the negative stigma attached to mental illness. I’m sharing for two main reasons; (1) to educate people, and (2) to show people like me that they are not alone.
For the record: I’m living with Bipolar Disorder and Obsessive Compulsive Disorder… In this post I’m sharing 10 “harmless things” that people have said to me that actually cause me a great deal of pain. I’m also sharing how they make me feel, and why, while giving you an inside look at my life.
So, these are the things I wish you wouldn’t say to me;
“You don’t look like you have a mental illness.” More commonly stated as…
As a novelist, tea is one of my best friends. If I want a boost, to warm my fingers, something tasty and healthy yet free of calories (given how writing involves little physical energy), or during the moments I want to commune with others (making a story can be like cooking, the ingredients being actually living).
Tea is infinitely varied — hot or cold, fruity or robust, earthy or sweet, and on and on — there’s a tea for everyone. Blogger Rhiannon Brunner lives in Vienna, Austria. She’s written a pile of books about subjects that interest her in German, which she’s planning to soon translate into English.
What’s your favorite tea? Here she describes hers…
Tea offers extremely valuable properties. Many minor physical pains can be easily relieved with the right one.
If you take a look at my tea box, you will find some herbs that serve healing purposes. The classics (rosehip, chamomile, and fennel) are of course included. However, I would like to present here two varieties that I have long considered to be absolutely essential:
Damiana tea tastes like dried hay.
Its positive effects include stress relief (it makes one slightly euphoric), relief of menstrual pain, and it has anti-inflammatory properties.
Many people find it helps relieve stomach problems, acts as an aphrodisiac, aids sleep, and strengthens the heart and general circulation.
If you don’t like the bitter taste, sweeten it with honey, because it tastes really bitter!
Above all, diabetics and health-conscious people enjoy its positive effects. If you want to lose weight, you are well advised to use it, since the usual diet does not need to be changed at all.
I have experienced this on my own body — although I did not even intend to. It includes saponins, which helps the body to break down dangerous abdominal fat (visceral fat). Bitter gourd helps to get rid of the type of fat that not even the most restrictive diets can get to. To check the results, I asked a couple of friends to drink the tea as well. Their results were like mine.
Bitter gourd is rich in iron, calcium, phosphorus, copper, potassium and the vitamins A, B1, B2, and C. Therefore, it is optimally suited for a health-conscious lifestyle.
Caution is advised only for pregnant women and people with low blood pressure.
My personal favorite way to take bitter gourd is this one, Trà Khổ Qua. It is a combination that also contains Reishi mushrooms, which makes the bitter gourd less bitter, as well as additionally healthy.
I highly recommend anyone to engage in tea and be open to a variety of impressions.
Good tea is like a beloved friend.And so — let me say — it is tea time.
“Flamenco & the Sitting Cat” is the title of the first of my soon-to-be self-published novels. The ‘Sitting Cat’ part of the title refers to the geographical shape of Iran…
I grew up with only classical music — and flamenco music and dance. My father, who left Barcelona in his mid-20s, wanted it that way. Since I left home at 18, it’s a gift to watch any type of dance I like and to listen to every kind of music that comes my way.
I still love classical — and flamenco! Especially fascinating to me is when flamenco is fused with the dance of Iran, where my husband was raised. Shahrokh Moshkin Ghalam is an Iranian dancer now residing in France. Flamenco is as much about individuality as it is about technique — it accommodates all cultures, all forms of beauty.
If only politics were as intent on creating a climate of ‘we’ rather than an ‘us vs. them’!